I'll admit my gaze was drawn to her eye, her poor in-turned eye.
I bugged my friends, "her eye, it's really noticeable isn't it?" The answer was always No. I think her eye bothers me more than it does her, I had to stop obsessing over it. And for the most part I have. It pains me seeing that sweet little hazel eye turned towards her nose, but now I view it as just another part of her amazing spirit. My girl is a fighter, she is sweet, caring, silly and stinky, she is a good friend and a lover of animals and gross jokes.
The JRA doesn't define who she is, nor does it control her. We let her do what she wants and is able. Yes I yell at her when she turns her ankles in, but I would yell at any child of mine that did that.
The school year ends tomorrow. I think I may be cheering almost as loudly as SP. Little girl has done fabulous. She got a "The Always Happy" class award for always smiling and being happy. And that's her, despite everything the steroids, the surgeries, the time out of school, the pain, the eye drops, the patching, etc... it doesn't get her down, she stays her sweet self :D
You might have noticed from the above picture taken on Monday that her cheeks have gone down! Yippee!
That has thrilled me. Her weight has not only stabilized but she is down 4 lbs. She can now fit into her original summer wardrobe. Silly me had gone and bought tons of summer clothes for both kids, a sale is a sale! but then SP went on steroids and gained 10 lbs in the blink of an eye and started popping out of all her clothes..which meant none of the new clothes I had purchased would fit. I was pretty upset at the waste of that money and clothes, but who could have foreseen the steroids? So then I went and bought more clothes...you can see where this is going right?
LOL Yup! She can now fit into the 1st set of clothes just fine where the 2nd set bags on her....maybe next summer? Oh well, I don't care about the money anymore, I'm just so relieved my sweet girl is looking and feeling more like herself again and the disease is quiet :D
Our next appointment got moved from the end of this month to early July, and I'm fine with that as well.
And so is SP!
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