Ophthalmologists and Appointments

Once the original eye inflammation got under control and we only had one joint flare-up, life continued and honestly we pushed the idea of JRA into the backs of our head. We couldn't let the fear of it take over our lives, and for now things didn't seem so bad.

SP did things all normal kids do, just a few exceptions, no burpees (yeah who would have thought a little kid would be doing those...a hardcore crossfit gym teacher that's who!), going easy on any activity that might compress the joints a bit too much. But sports were encouraged, so soccer and swim continued. We lost our amazing Ophthalmologist Dr Milner in July 2014 to retirement, a well deserved one, but we would miss him and his upbeat attitude. Thankfully he referred us to the team up at AI DuPont Children's Hospital, and since our Rheumatologist was up there, it made sense. Funny enough months later it came up in conversation how they, Dr Rose and Dr Salvin had breakfast together at times, teamwork! and communication between doctors is a must. :D Before he retired, Dr Milner cautioned us that a surgery to remove the band keratopathy would need to be soon and she would not be a happy camper after the surgery. I couldn't make the first appointment with the new Ophthamologist Dr Salvin, so I had to hear the news over the phone from my husband. Not only was the band keratopathy bad but she also had a cataract. I was in the middle of a store with our 3 yr old son and wanted to curl into a ball on the floor and sob. My baby had a cataract! Cataracts are for old people not small children!!! The bubble of calm and peace we had been living in for months popped.