November 2014
The morning of surgery, Daddy wasn't feeling very well, so we left him and brother at home. SP and I made the trek up to DuPont in mostly good spirits. The knee procedure had gone well, so SP had no fears of another surgery- looking back I am so thankful for that!
I somehow missed a turn and with the soggy weather we were really running behind, we got up to the right area and her name was immediately called. Inside I was a mess. Handing your baby over for surgery is a feeling unlike any other. Your most precious gift is taken back behind those swinging doors, away from you, you know she is in skilled hands, but everything is outside of your control.
SP was such a trooper, so very brave going in. Sadly coming out of anesthesia was a nightmare. She screamed, kicked, cried and tried to rip the patch covering her eye. It took two nurses and myself to hold her down and stop her. I got into the bed and held my poor brave girl and thankfully she fell asleep. When she awoke she was much calmer but still in pain.
The band keratopathy removal went really well in that almost all of it came off, sadly the cataract is very bad and the Dr feels she will need her lens replaced. With her JIA if she has another flare-up in her eye it could cause the lens to be moved requiring more surgery, we can only hope that doesn't happen.
At home SP was very unhappy, she would get random bursts of pain that would cause her to scream. In the days following we gave her drops and I was unhappy to see how crossed her eye suddenly looked, I hoped that was just a temporary side effect of the surgery.
At the follow-up appt 5 days later, the Dr was surprised SP was not in constant pain because the eye is still deeply scratched. We kept her out of school for the rest of the week. She was still having random times of pain that causes her to scream so I couldn't have imagined sending her to school like that!
The cataract surgery was scheduled for in January and thankfully we were told that it is not as painful as the band keratopathy surgery that she just had. Thank goodness for small blessings! Though at that point I wondered if we would have to drag SP kicking and screaming into the hospital for another surgery after the rough experience of the band surgery :(
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