April 8, 2015: Good Appointment

Today was a good appointment, the disease is quiet- those words are music to our ears :D We can begin to wean SP off of oral steroids, HALLELUJAH! Oral steroids while awesome at what they do have some very not so nice side effects :(
*weight gain - SP put on 7-8 lbs in the 4 weeks she has been on them

*moon face- big cheeks? oh yes!
*mood swings - yikes! it's like a 20 teenagers inside her little body, emotional overload!
*irritability - sadly yes! she has even begun to hit herself when she simply cannot process what is going on :(

1st picture shortly after cataract surgery, before steroids

2nd picture is current while on steroids, her poor cheeks







We also learned that sadly there are more eye surgeries in SP's future, eye muscle and another band keratopathy removal, the good news is that both can be done at the same time. While I'm not at all happy my sweet girl needs these done, I remain hopeful that we are moving in the right direction and doing what is best for SP.