Just starting out

Posts will be out of order and dealing with older issues until I get caught up and then it will be in real time :)

Monday, September 21, 2015

September 21, 2015: Moving Ahead

Today's post will be short and not very sweet, it wasn't a good day.

Had SP's appointment with the rheumatologist and she will need to be on long-term medicine. The plan is, she will be on Methotrexate, we'll be injecting it into her arm every Saturday, she will be taking folic acid as that has been shown to help with the nausea, mouth sores and other side effects from the Methotrexate. There is risk of liver inflammation so every 3 months she needs to have blood work to check on her liver function. We will begin this Saturday and if there is no improvement in her wrist within a few weeks we are to call and get scheduled to have a corticosteroid injection in her wrist. Her poor wrist this morning

The big plus is this should get her JRA/JIA inflammation under control, including any flare-ups in her eye. The bad news is that it has gotten to this point. She is now on permanent physical restrictions.

To say I am heartbroken and sad today is an understatement. My girl is here and happy and for that I am thankful and joyful, but I'm sad for all that she must go through.